Navigating the System: A Guide For Family Members Of People With Intellectual Disabilities features information on respite, early childhood intervention, education, medical care and many other systems. Now in its 4th edition, this valuable resource offers a wealth of information on how you can work with the systems that you will encounter.
You can download the whole book as well as individual chapters here.
The book is also available in print. Contact firstname.lastname@example.org to get a copy.